About Me
- Little Landon Knight
- My name is Landon Knight. I will be 6 on November 22, 2011!! I will also start kindergarten this coming August 2011 and am so excited!!! I have underwent 14 major surgeries due to my syndrome:Haddad's Syndrome (Congenital Central Hypoventilation Syndrome, Hirshsprung's Disease, and Epilepsy) My autonomic nervous system is totally dysfunctional, my brain does NOT tell me to breathe, so I live on a portable version of life support, a home ventilator.I also have no colon because of the Hirshsprung's....7 surgeries having been to reconstruct my colon/ gut/ stomach/ rectum, etc. I also have seizures but have been doing better than ever... Though i take seizure meds everyday, My last seizure was June 2009!!!I used to have a feeding tube and a colostomy and ileostomy bag but had many surgeries to reverse them. So though I have a trach and am hooked to a ventilator 24/7 and have been since right after birth, I am learning how to vocalize more and more everyday, using sign language less and less... But I am like your typical 5 year old boy!I know I'm a miracle,and I will continue to overcome anything in my path....!
