About Me

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My name is Landon Knight. I will be 6 on November 22, 2011!! I will also start kindergarten this coming August 2011 and am so excited!!! I have underwent 14 major surgeries due to my syndrome:Haddad's Syndrome (Congenital Central Hypoventilation Syndrome, Hirshsprung's Disease, and Epilepsy) My autonomic nervous system is totally dysfunctional, my brain does NOT tell me to breathe, so I live on a portable version of life support, a home ventilator.I also have no colon because of the Hirshsprung's....7 surgeries having been to reconstruct my colon/ gut/ stomach/ rectum, etc. I also have seizures but have been doing better than ever... Though i take seizure meds everyday, My last seizure was June 2009!!!I used to have a feeding tube and a colostomy and ileostomy bag but had many surgeries to reverse them. So though I have a trach and am hooked to a ventilator 24/7 and have been since right after birth, I am learning how to vocalize more and more everyday, using sign language less and less... But I am like your typical 5 year old boy!I know I'm a miracle,and I will continue to overcome anything in my path....!

My Early Years

I was born on November 22, 2005......

I never cried or took my first breath.....

And so MY JOURNEY BEGAN.....




Taking me away from the operating room, heading to the NICU

On oxygen for first few hours, but after repeated resusitations.....

I had to be intubated and put on life support


I spent the first 3 days of life at the local hospital in Hammond, La. where I was born....but I puzzled them all. I was then transferred to Woman's hospital in Baton Rouge, La...where I will spend the next 5 months of my life.....
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