About Me

My photo
My name is Landon Knight. I will be 6 on November 22, 2011!! I will also start kindergarten this coming August 2011 and am so excited!!! I have underwent 14 major surgeries due to my syndrome:Haddad's Syndrome (Congenital Central Hypoventilation Syndrome, Hirshsprung's Disease, and Epilepsy) My autonomic nervous system is totally dysfunctional, my brain does NOT tell me to breathe, so I live on a portable version of life support, a home ventilator.I also have no colon because of the Hirshsprung's....7 surgeries having been to reconstruct my colon/ gut/ stomach/ rectum, etc. I also have seizures but have been doing better than ever... Though i take seizure meds everyday, My last seizure was June 2009!!!I used to have a feeding tube and a colostomy and ileostomy bag but had many surgeries to reverse them. So though I have a trach and am hooked to a ventilator 24/7 and have been since right after birth, I am learning how to vocalize more and more everyday, using sign language less and less... But I am like your typical 5 year old boy!I know I'm a miracle,and I will continue to overcome anything in my path....!

Follow Me HERE !!!

APRIL 18, 2011

The LONG AWAITED...Diaphragm PACER SURGERY DAY!!
Checking in at Children's Hospital of Dallas early morning, surgery's at 8:30am. Family and friends are here to support me....Here goes nothing!

Getting ready in Pre-Op

Heading back to the OR, taking my monster truck with me!


Recovering in ICU...it went very GOOD!!

In ICU


Day 2, waking up


2 incisions on left and 2 on right, pacers are implanted under bottom cuts,
then 2 drain tubes but they will be pulled out in a few days..

In good spirits!!!


Getting out of ICU today, going to the ventilator floor...
Subscribe to: Posts (Atom)